I am excited to be a part of one of the great charitable programs credit unions lead — the Credit Union Kids at Heart Boston Marathon Team. I have run four marathons, but I have never been as motivated as I am for Boston in 2013. My source of motivation is my patient partner, Davis, who is a nine-year-old boy receiving treatment at Boston Children’s Hospital. The Kids at Heart program pairs runners with patients, which personalizes the event and creates a wonderful bond among all the participants, runners and patients alike.
Jay Johnson with 9-year-old Davis.
Davis had a tough start to life. He is one of the approximately 6,000 children born annually in the United States that has Down syndrome. His family’s pediatrician did not have the background to understand the effects of the genetic condition, so the gastrointestinal issues Davis experienced during the first two weeks of life were not treated appropriately. Fortunately, after 10 days of symptoms the doctor referred Davis’ family to Boston Children’s Hospital. The team at the hospital determined the proper course of treatment and literally saved Davis’ life. The Down Syndrome Program in the Developmental Medicine Center at Boston Children's Hospital continues to be an incredible resource for Davis and his family. It coordinates appointments and ongoing care with all of the specialists Davis sees.
I was able to meet Davis and his family a few weeks ago at the Dec. 2 Credit Unions Kids at Heart kickoff party. Davis and his two brothers, Palmer and Carter, are a great group of siblings and just what you would expect from young Boston-area boys — they love sports and are big fans of the Patriots, Red Sox, and Celtics. I will be wishing Davis a happy birthday this week as he turns 10. He is an active boy with a big, loving personality. This is the second year he has been a part of the Kids at Heart team and he is excited for the marathon. In fact, he expects me to win! Although I might not win, I will be giving it my all as I train for the April 15 race with him as my motivation.
As part of my participation in Credit Unions Kids at Heart, I am raising funds for Boston Children’s Hospital. Through the program, credit unions have donated more than $3.5 million since 1996. In 2012, the program raised more than $200,000 for Boston Children’s Hospital. Organized by EasCorp, there are currently 36 credit union sponsors of the program.
Help Boston Children’s Hospital continue its amazing, life-saving work with children of all ages and medical issues by making a tax-deductible donation toward my participation in the CU Kids at Heart program. Just follow this link: http://www.milesformiracles.org/boston/JayJohnson
I am happy to announce Callahan & Associates has kicked off my participation with a generous donation. I hope you are able to support me, and Davis, too.